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Resources

Special Medical Formula and Food Program

Individuals with genetic amino acid and organic acids disorders need to eat a special diet with limited protein. The Iowa Newborn Screening Program identifies individuals to receive assistance in accommodating dietary changes associated with these disorders. The University of Iowa Stead Family Department of Pediatrics provides the service.

To see if you may be eligible for the program, contact Lisa Neff-Letts at the University of Iowa Stead Family Department of Pediatrics, at either (319) 384-6138 or (866) 890-5965.

CY 2018 Metabolic Food and Formula Program Annual Report

Other resources for you:

 

 

 

 

Cooley's Anemia Foundation 

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Save the Date Flyer 2018 Patient-Family Conference

Click here to receive more information about Cooley's Anemia Foundation