Participant Materials

Participants chosen for the Community Engagement Event will be asked to read the following information before attending.  Information is available in text and audio form.

Event Materials

  • What is Newborn Screening Powerpoint
  • Decision Making and Adding New Conditions to the Panel: a review of ethics, current challenges to NBS, and considering New Conditions Powerpoint
  • Inherited Conditions, NBS, and Treatment: Pompe Disease and MPS-1 Powerpoint
  • What is X-ALD Powerpoint