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Neuromuscular and Related Genetic Disorders Program

Our program supports individuals with neuromuscular and related disorders and their families. These may include:

  • Duchenne muscular dystrophy
  • Becker muscular dystrophy
  • Limb-girdle muscular dystrophy
  • Congenital muscular dystrophy
  • Spinal muscular atrophy
  • Myasthenia gravis
  • Charcot-marie-tooth
  • Fredreich’s ataxia

According to our most recent report, in conjunction with practitioners and other allied health staff, we served 738 people in six different Iowa communities in 2013. Additionally, we are passionate about providing genetics education around the state to promote healthy communities and prevent disease.

Read a little bit more about our program in our Iowa Neuromuscular Program Annual Report.

Clinics – Sites and Schedules

Neuromuscular and related disorders are located across Iowa in Bettendorf, Davenport, Dubuque, Des Moines, Iowa City, Mason City, Sioux City and Waterloo. Locate the site nearest to you to connect your patients to the specialized services they need.

Iowa City, Iowa

UI Children's Hospital
Pediatric Specialty Clinic
200 Hawkins Drive, 2400 Colloton Pavilion
Iowa City, Iowa 52242

Appointment: 319-356-2229

Emergency: 319-356-1616

Toll Free: 888-573-KIDS (5437)

Bettendorf, Iowa

University of Iowa Children's Hospital - Pediatric Specialty Services
Genesis Health Group
865 Lincoln Road, Suite 500
Bettendorf, Iowa 52722

855-543-2884(855 KID AT UI)

Dubuque, Iowa

Mercy Health Center
250 Mercy Drive
Dubuque, Iowa 52001

877-891-5350

Johnston, Iowa

ChildServe
5406 Merle Hay Road
Johnston, Iowa 50131

877-891-5350

Mason City, Iowa

Mercy Pediatric & Adolescent Clinic
910 North Eisenhower
Mason City, Iowa 50401

877-891-5350

Sioux City, Iowa

St Luke's Regional Medical Center
2800 Pierce Street, Suite 311
Sioux City, Iowa 51104

877-891-5350

Waterloo, Iowa

Peoples Community Health Clinic
905 East Franklin Street
Waterloo, Iowa 50703

877-891-5350

Waterloo, Iowa

Located at Covenant Clinic - Pediatrics
2710 St. Francis Dr, Suite 510
Waterloo, Iowa 50702

855-543-2884(855 KID AT UI)

What services are provided?

Your patient may receive a number of services at our partner clinics, including:

  • Diagnostic evaluation
  • Advice for daily living with muscle and brain disorders
  • Educational materials
  • Family and patient support services
  • Research opportunities
  • Physical therapy evaluation and recommendations

It is important that providers at all treatment sites are communicating to determine the best possible treatment for the patient.

How do I make a referral?

Referrals are accepted from physicians, nurses, social workers, teachers, family members and others. To arrange an appointment for neuromuscular services or inquire about educational presentations, call 319-353-6200.

Katherine Mathews, MD                                            

Neuromuscular Program Director                       

Division of Child Neurology                                     

Department of Pediatrics                                        

200 Hawkins Drive                                                     

Iowa City, Iowa 52242                                              

319-356-7726(P)                                                        

319-384-8818(F)

Christina Trout, RN, MSN

Advanced Practice Nurse

Neuromuscular Program Department of Pediatrics

200 Hawkins Drive

Iowa City, Iowa 52242

319-353-6200(P)

319-384-8818or 319-356-4855 (fax)

Scheduling an Appointment or Referral

Along with providing support for those with neuromuscular and related disorders, we are passionate about providing genetic education throughout the state of Iowa.

Contact Christina Trout, RN, MSN, neuromuscular program associate, with any specific information requests that you may have at (319) 356-1851.

Use these informational resources to learn more about neuromuscular disorders and empower your patients.